Friday, November 26, 2010

Filling In The Gap

I can't believe that there is a whole year of space in my posts. Can't believe that I missed out on writing about everything.
Not much to say though, from before the 9 weeks of my last post to my 4th month or later I was very sick. Lost 10 lbs. But in the end I more than made up for it. In a single month I'd put on over twenty.
They said I would deliver early, closer to the beginning of the month and everyone at work thought I'd go even before that. But he held out on me and I went into active labor just after midnight on my due date.
Those work people are a different story. While I was preggo they were all like; how exciting a boy, have you done a registry, you now we'll do something. Nothing. Not even a phone call.
We found out about his cleft when he was born, out he came and the midwife asked if we knew already. No, but that's just kinda how my life goes. He was amazing and perfect, grey eyes and a head full of dark brown hair that stood straight up.
I didn't understand why he wasn't moved into my room after he was cleaned up. The doctors and nurses didn't know what to do with him and how to care for him, they didn't have the equipment to feed him properly so instead of being with me, he was in the nursery. That wasn't a welcoming environment either. From the time he left the delivery room till I was discharged 2 days later, I held him 3 times.
The doctor who saw him had told us in the delivery room that if they got him eating from a tube he would be coming home with us, but instead they transferred him to another hospital.
A week of driving over an hour to see my baby. A week of leaving him behind every evening. A week of having no one to call or talk to, no one asking how things were going. A week of them telling me every evening he would probably be coming home the next day and then the next morning saying no. A week of wanting to bring him home AMA because I knew that once he was home he'd do better.
And he did. Once he was home and only one person was keeping track of his feedings and sleep, he started eating so much more. Instead of being kept to a strict schedule like at the hospital where he was only fed every few hours instead of as needed, he was allowed to eat as much as he could as often as he was willing and pretty soon he was ahead of the eating curve.
One surgeon would have done his palate repair in December which would have been great, but the doctor never actually answered any of my questions. He never really communicated with me. I have to know what is happening with my baby.
Another was going to wait until a year to a year and a half old. Too late for me and again, bad parental communication skills.
When we met with Shriner's, the doctor answered my whole list of questions, in detail, before I asked them. He gave honest opinions and didn't spend time trying to say how he was the best person to do the surgery.